May 20, 2001
On Friday night I was at the abominable Chelsea bar XL, and a cute albeit preppy Chelsea boy tapped me on the shoulder and asked, "Why don't you have any hair?"
I considered this a surprising and rude question. I had something covering my head. What gave me away, my lack of eyebrows? Instantly I felt like "CANCER BOY". So I raised what would have normally been an eyebrow and snapped back "Why are you asking me that??"
He answered by saying he was only curious so I wowed him by saying I just went through 5 1/2 months of chemotherapy. Suddenly concerned, he asked why. I said "CANCER."
A short conversation later, he was reduced to saying how handsome and adorable I was - repeatedly. It was either guilt or the truth, but either way, I felt glad to have shamed him into it.
Meanwhile, all of the bartenders and half the clientele were shaved down to look like 10 year olds. But Chelsea boys, now there's something much easier - chemotherapy!
Here's a hint for all of you - if you see me out, do not ask me why I don't have any hair. Its a reminder of unpleasant things. Luckily, as my hair grows more, my identification with cancer will grow less.
Nicole Kidman was on Oprah last Friday. Regarding her split with Tom Cruise, she said she was surprised by the enormous amount of love and support she received from friends and family, adding that she was also surprised when some people she thought were her friends turned away.
``Surprisingly some people I thought would be there have not been,'' she said. ``It's hurtful. And people I would never have thought have been a life force."
The same thing happened in my cancer situation. In fact, later on at XL, I ran into a formerly close friend of mine who halted all contact with me a month after my cancer diagnosis. He didn't acknowledge that anything was odd about running into me. Not one to cause drama, I was civil but not overly friendly.
Shockingly, one of my best friends thinks I'm wrong to hold anything against him. I can't understand this attitude and it just makes me feel even more isolated, enraged, and misunderstood. How can I possibly be friends with someone who dropped me with no explanation when I needed him most? If I were evil I'd call immigration on his Mexican ass, but I'm not. And as for the boy who thinks I should be more forgiving, well, earlier that night he admitted to liking Queen Latifah's talk show, so there may be some judgment lacking.
I recognized one of the barbacks at XL as a hot Colombian guy who hit on me two weeks in a row at Roxy before I got sick. Since, at the time, we seemed to have a rapport (and he a jones for me), I said hello, but he neither recognized nor seemed to care who I was, which reminded me that time has moved on for everyone who didn't have cancer, whereas for myself it feels like time stopped for almost 6 months. Indeed, the relationships between all of my friends have subtly changed during that time. Two good friends I have aren't even friends with each other anymore, a fact which I find sad but also annoying because it inconveniences me.
The friends I was with at XL left early (with no good excuse) but luckily I ran into a partyboy acquaintance of mine. He took me to Jay's after XL's closing. There, he got a blowjob in the basement while I remained on the ground level talking to a cutie. But after a few minutes I realized my cutie was straight.
Surprised, I said "I'm not even sure what I'm doing at Jay's, but I really don't know why a straight guy would come here."
"Well, I really like the music!" he replied as Mariah Carey droned onto an empty dancefloor.
Minutes later partyboy came back upstairs and grabbed the straight guy's crotch, scaring him off, so I went home.
I'm hairless, I weigh 15 lbs less than I did back in December, I get winded very easily (no dancing for me - yet), and my hand shakes if I try to write. But my strength has returned in some ways, most importantly through biting wit, sarcasm, and an overwhelming sense of self-importance.
Death is my bitch.
The response to my illness was quite phenomenal. I appreciate everything everyone emailed me and I'm really touched by how many people care so much about me and this web page. It is a testament to the bond that all lovers of dance music share.
Here are a few quotes meant to illustrate the variety of emails I received. I can’t quote everyone or else the page would take hours to get through! Many of you wrote about your own experiences with cancer or HIV, and to all of you I am especially grateful.
This song was released during my incapacitation so some of you may be sick of it, but I love it. Listen to it as you read on:
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I hope you've got someone you can cry with if you feel like it. I would find it pretty suckular to have to wonder whether people are more sad than they're letting on. Thanks again for all you do, and stay as positive as your soul wants to be. - Fernand / Ottawa Your latest posting is a truly haunting
account of your journey. If I can reassure you on any level, it's this: You
haven't lost any of the wit, drama, or intelligence of your fiercely engaged
mind. And when (not if) your time comes, as it must for all of us, that
is what will be remembered. Your words have touched my soul. So honest
and real. Nothing less from you. Please know that I and many others have
you in our thoughts and prayers. You are a force to be reckoned with and
i dont believe that this is going to be the thing that takes you away from
us. a strong voice only comes along once in awhile, and we're blessed that
you can convey the thoughts and feelings of many. again i wish you all the
best, and hope that you come out of this a new and refreshed person, ready
to take on warner brothers :) I've heard through a close friend about
your recent battle with Cancer...and was horrified. New and Recent Firewall
technology has kept me off of HOD, however the friend has passed the text
updates along. I don't know you but a friend of mine referred
me to your site to hear some good music. I was struck by your story.
I designed my mother's web page detailing the struggle she had with leukemia
and her bone marrow transplant recovery. Unfortunately she only lasted
11 months after the transplant and she passed away two days before Halloween.
I am still struggling with this loss on a daily basis. The news of your cancer diagnosis is indeed
distressing and sad, but I know that folks like us get through things like
this with much grace and power. Almost eight years ago, I was told that
I didn't have much of an immune system left at the age of twenty-five.
Here I am, thirty-one now, healthier and more radiant than ever with faith
and love abounding everywhere. Suffice to say, house music and trance have
had a LOT to do with my own healing. Note: I ought to bring those 80s girls back.
I featured them before I started archiving selected updates!
I love the music on your site and sorry
to hear about the cancer. I don't approve of the drag queen/gay ish
lifestyle but I guess if you don't believe in the afterlife then u may as
well do what u wanna. Thanks - I think. In regards to what "LuLu" said about the
afterlife, I hope you aren't as brainwashed by an organized religion as she
is. I'm a free thinker and I believe that if there is a god, and I think
there is, he wouldn't make something a certain way and hate it. We
do have a place in heaven based on the good that you do in your life rather
than who you were made to love. So keep your head up, and focus on making
it through this. You can... I can't wait until your sassy ass comes
back full force! :o) Thanks Kev, and my sassy ass will be back
in full force before you know it! I doubt that you would remember me, seeing
as i have only emailed you Oh my God! What can I say? I visit your
page often but when I came back from vacation what do I find??? Bush president
and you? Sick? I don't think so, not for long anyway. I just wanted to send you a quick note,
and let you know how much I have enjoyed your site over the last few years…
That's good advice that my doctors never
gave me. I must tell you that you are beautiful.
I looked through your pics and I just can't believe what I see, I am just
so amazed. I wanted to write to you and tell you that...
i am just now catching up on your eloquent
descriptions of what you've been going through with your cancer. reading
your notes is particularly poignant for me since i was recently diagnosed
hiv+ and have a lot of fears and uncertainty about the future.
reading about the incredible pain and sense of being drained of life that
you describe, i admire you for keeping going. i have always said to
myself that if i got that sick, i would simply end it. and i don't really
want to go on the anti-hiv meds, since from what i understand they can make
your life miserable. already i've been having stomach/digestive problems
and have felt kind weaker and needed more sleep--in short, i feel sickly.
I felt like I had no choice but to endure,
except for one time. I wrote you a few months ago about acquiring
music that was out of print. You lead me to Napster to find these hard-to-find
songs. Again, THANK YOU! I'm not so sure if you remember me... I'm
a Japanese fan of your site. I have done some emails back and forth with
you before. I really enjoy reading your site every week. I hope you'll get
well and come back for us soon. We your fans are always with you, even though
we are scattered around the world. I am very sorry to hear about your illness.
As a chemotherapy nurse I was very dissappointed to find that you did not
specify your treatment as high dose chemotherapy. Many cancer patients
fear chemo because of the horror stories that they hear. Please be more
considerate of the newly diagnosed patients that you may be impacting with
the description of your treatment… Another Haiku for my ailing friend:
diabolique, my beautiful darling and provider
of some of the best music that ever graced my CD player - found out about
what you are going through right now, it might sound ridiculous because
I do not really know you but nevertheless, you have always been so close
to me, virtually, because of your love for the same music I love, your intelligent
and always inspiring views, so I just sat in front of the PC and cried.
I first stumbled upon the House of Diabolique
Hall of Honorary Members on a whim somehow a few years back and though it
slipped below my radar for a year or so, I stopped back yesterday to encounter
your glowing tribute to Little Eddie Furlong. Thank you for the peals
of laughter you sent me into with that hilarious piece! I especially
enjoyed the song snippets. What a pop star. I read what's happened to you lately.
Damn. It seems we have even more in common than i thought! I
know all too well what you might be going through. I had a similar problem in that I was constantly being roomed with guys who had hearing problems and had their televisions blasting throughout the day and night! Finally after 18 hours i couldn't take it no more, i started threating to throw myself off the 5th floor (the cancer wing of course) window unless they brought me morphine. (little did i know the windows had bars on them, apparently there were thinking way ahead of me) They eventually called my doctor and he gave the OK. Did i mention how much i love morphine? haha I, too, learned to love morphine. I demanded it often! I understand exactly what you talked about
earlier about the nightmare of being in the hospital. I'm telling
you if there is hell on earth...me and you have both truly been there now!
:) I remember one day i woke up feeling good enough to get up
and maybe go walk down to the visiting area on that floor.
Of course i had to drag both IV racks with me with tubes running in and
out of me, like walking down a hallway with a pair of coat racks on wheels.
My drain tubes were still in too. Very attractive too if you've ever
seen them, they were inserted under the skin on my skull just behind the
ears...kinda like that borg leader on star trek. When i got down
there, there was this family You better! It's going to be the best stuff too.
Way better than the crap i was writing last year! Please do not make fun of my grammar, it's
very poor. I am a latin girl who just recently moved here to the US.
I found your web site by accident, and ever since it has been a honor to be
able to just click on my favorites and get all the information that I need
about house music. You got the right stuff. I love all your favorites
picks,when it comes to music. To day i keep on searching around your
home page, and i discovered your illness. It broke my heart to hear
that this could happens to some one as fortunate as you.
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I have a real love for everyone who emailed me.
until next week, remember..
when you dance, we are a part of what you feel!
Real Audio is required to hear
anything.
If you'd like to read more of my cancer updates:
12/10/01
- Pre-Cancer Fears
01/22/01
- Time Becomes a Loop
02/11/01
- The Second Opinion
04/08/01
- Fragility
05/01/01
- Beginning of the End
05/07/01
- Death is my Bitch
05/20/01
- Cancer: The END
06/11/01
- A Trip to San Francisco
6/17/01
- Things I Love After Cancer
07/01/01
- Cancer: Enough Already
12/16/01
- Anniversary
House
of Diabolique: 31 (a music mix)
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